Ingane engakazalwa ezinyangeni ezinhlanu
NGINE angikaze ngihlale phansi, ngikhuthazelwe ukukhuluma ngendaba, kepha angasho lutho. Namuhla, ngiphelelwe ngamazwi.
Ngacabanga ngemuva kwayo yonke le minyaka, ukuthi ngezwa konke okwakuzokuzwa ngokukhipha isisu. Kodwa nganginephutha. Ngicabange ukwethuka "ukukhipha isisu okuyingxenye"kuzoba ngumkhawulo ekuvumeleni kwethu umphakathi" okhululekile futhi wentando yeningi "ukuqeda impilo engakazalwa (kuchazwe ukukhipha isisu okuyingxenye lapha). Kodwa nganginephutha. Kukhona enye indlela ebizwa ngokuthi "ukukhipha isisu bukhoma bukhoma" okwenziwa e-USA. Ngizovele ngivumele owayengumhlengikazi, uJill Stanek, akutshele indaba yakhe:
Nganginonyaka ngisebenza eChrist Hospital e-Oak Lawn, e-Illinois, njengomhlengikazi obhalisiwe eMnyangweni Wezabasebenzi Nokulethwa Kwezidingo, lapho ngizwa embikweni wokuthi sasikhipha isisu sengane yesithathu esine-Down's syndrome. Ngashaqeka ngokuphelele. Empeleni, ngangikhethe ngokukhethekile ukusebenza eChrist Hospital ngoba kwakuyisibhedlela sobuKristu futhi sasingabandakanyeki, ngakho ngacabanga, ekukhipheni isisu….
Kodwa okwakucindezela kakhulu kwakuwukufunda ngendlela iChrist Hospital esisebenzisa ngayo ukukhipha isisu, ebizwa ngokuthi isisu sokukhipha isisu somsebenzi, manje esaziwa nangokuthi "ukukhipha isisu bukhoma." Kule nqubo ethile yokukhipha isisu odokotela abazami ukubulala ingane esibelethweni. Umgomo ukuletha nje ngaphambi kwesikhathi ingane efa ngesikhathi sokubeletha noma ngemuva nje kwalokho.
Ukwenza isisu sokukhipha isisu, udokotela noma umhlali ufaka umuthi emgodini wokuzalwa kamama eduze nomlomo wesibeletho. Umlomo wesibeletho ukuvuleka ngaphansi kwesibeletho okuvame ukuhlala kuvaliwe kuze kube yilapho umama esenamasonto angama-40 ekhulelwe futhi ekulungele ukubeletha. Lo muthi ucasula umlomo wesibeletho futhi uwukhuthaze ukuthi uvule kusenesikhathi. Lapho lokhu kwenzeka, ingane yokuqala yesibili noma yesithathu ye-trimester pre-term, umntwana owakheke ngokuphelele uwela esibelethweni, kwesinye isikhathi uyaphila. Ngokomthetho, uma ingane ekhishwe isisu izalwa iphila, kufanele kukhishwe izitifiketi zokuzalwa nezokufa. Kuyindida ukuthi esibhedlela iChristian imbangela yokufa evame ukufakwa ohlwini lwabantwana abakhishwe izisu bukhoma "kungukuvuthwa okwedlulele," okuwukuvuma kodokotela ukuthi babangele lokhu kufa.
Akuvamile ukuthi ingane ekhishwe isisu bukhoma ihlale isikhathi esingangehora noma amabili noma nangaphezulu. Esibhedlela iChristian enye yalezi zingane ibiphila cishe isikhathi sonke samahora ayisishiyagalombili. Ezinye izingane ezikhishwe izisu ziphilile, ngoba iChrist Hospital izophinda ikhiphe isisu impilo yonke noma "impilo" kamama, kanye nokudlwengulwa noma ukulala nesihlobo.
Uma kwenzeka ukuthi ingane ekhishwe isisu izalwe iphila, yona noma yona ithola "ukunakekelwa kwenduduzo," okuchazwa njengokugcina ingane ifudumele ngengubo ize ife. Abazali bangayibamba ingane uma bethanda. Uma abazali bengafuni ukubamba ingane yabo ekhishwa izisu, isisebenzi siyayinakekela ize ife. Uma abasebenzi bengenaso isikhathi noma isifiso sokubamba ingane, uyiswa eChrist Hospital entsha Igumbi Lokududuza, ephelele nge Umshini wokuqala wezithombe uma abazali befuna izithombe zobungcweti zengane yabo ekhishwe isisu, izinto zokubhabhadisa, imijiva, nezitifiketi, okokunyathelisa ngezinyawo namasongo ezingane zezikhumbuzo, kanye a ukuzamazama kwesihlalo. Ngaphambi kokuba kusungulwe Igumbi Lokududuza, izingane zayiswa eGumbini Lokusetshenziswa Okungcolisiwe ukuze zife.
Ngobunye ubusuku, umhlengikazi esasisebenza naye wayethatha umntwana we-Down's syndrome owakhishwa isisu ephila wayiswa egumbini lethu le-Soiled Utility Room ngoba abazali bakhe babengafuni ukumbamba, futhi wayengenaso isikhathi sokumbamba. Angikwazanga ukuthwala umcabango wokuthi le ngane ehluphekayo ifa yodwa eKamelweni Elisetshenzisiwe Elingcolile, ngakho-ke ngazala ngayo futhi ngamnyakazisa imizuzu engama-45 ayiphilayo. Wayenamasonto aphakathi kwama-21 nama-22 ubudala, enesisindo esingamakhilogremu ayi-1/2, futhi cishe ayengamasentimitha ayishumi ubude. Wayebuthakathaka kakhulu ukuba anganyakaza kakhulu, esebenzisa noma yimaphi amandla abenawo lapho ezama ukuphefumula. Ngasekugcineni wayethule engingakwazi ukusho ukuthi usaphila yini. Ngambamba ngamkhanyisa ukuze ngibone ngodonga lwesifuba sakhe ukuthi ngabe inhliziyo yakhe isashaya yini. Ngemuva kokuthi kuthiwe ufile, sasonga izingalo zakhe esifubeni, samsonga ngendwangu encane, samyisa emakhazeni asesibhedlela lapho kuthathwa khona zonke iziguli zethu ezifile.
Ngemuva kokubamba leyo ngane, isisindo salokho engangikwazi sasiba nzima kakhulu kimi ukuba ngisithwale. Nginezinqumo ezimbili. Inketho eyodwa kwakuwukushiya esibhedlela ngiyosebenza esibhedlela esasingakhiphi isisu. Okunye bekuwukuzama ukuguqula umkhuba wokukhipha isisu eChrist Hospital. Ngabe sengifunda umBhalo owawukhuluma nami ngqo nesimo sami. Izaga 24: 11-12 ithi,
Sindisa labo abagwetshwe intambo ngokungafanele; ungasukumi uyeke bafe. Ungazami ukulahla umthwalo wemfanelo ngokuthi ubungazi ngakho. Ngoba uNkulunkulu, owazi zonke izinhliziyo, uyazi ezakho, futhi uyazi ukuthi ubazi! Futhi uyovuza wonke umuntu ngokwezenzo zakhe.
Nganquma ukuthi ukuyeka ngaleso sikhathi kuzoba ukunganaki nokungamlaleli uNkulunkulu. Impela, ngingakhululeka ngokwengeziwe uma ngiphuma esibhedlela, kodwa izingane zizoqhubeka nokufa.
Uhambo uNkulunkulu angithathe ngalo selokhu ngaphuma okokuqala ngokulalela ukulwa nokukhishwa kwesisu esibhedlela esabizwa ngeNdodana Yakhe lube lukhulu! Ngihambahamba izwe lonke manje, ngichaza lokho mina noma abanye abasebenzi abakubonile. Ngifakaze izikhathi ezine phambi kwamaKomidi Angaphansi Kazwelonke nase-Illinois. Kwethulwa iMithethosivivinywa yokumisa le ndlela yokukhipha isisu okuholela ekubulaweni kwezinsana. Isihloko seChristian Hospital nokukhipha isisu bukhoma kuzuze ukunakwa kakhulu ngumphakathi. Izincazelo "zokukhishwa kwezisu okubukhoma bukhoma" manje sezitshelwe kuthelevishini kazwelonke, emsakazweni, ekuphrintiwe, nangabomthetho bendawo nabasekhaya.
Omunye umhlengikazi waseChrist Hospital naye wafakaza nami eWashington. U-Allison uchaze ngokungena egumbini le-Soiled Utility Room izikhawu ezimbili ezihlukene ukuthola izingane ezihushulwe bukhoma ezishiywe zinqunu esikalini nasekhawunteni lensimbi. Ngafakaza ngomuntu osebenza emsebenzini owaphonsa ngengozi ingane ekhishwe isisu bukhoma kudoti. Ingane ibishiywe etafuleni leSoiled Utility Room isongwe ngethawula elilahlwayo. Lapho engangisebenza naye ekubona lokho ayekwenzile, waqala wadlula kudoti wayofuna ingane, ingane yawa phansi ngethawula yawela phansi.
Ezinye izibhedlela manje sezikuvumile ukuthi benza isisu sokuzalwa bukhoma. Ngokusobala akuyona indlela engavamile yokukhipha isisu. Kodwa iChrist Hospital yayiyisibhedlela sokuqala e-United States ukudalulwa obala ngokwenza lolu hlobo lokuhushula isisu.
Ngo-Agasti 31, 2001, ngemuva kwempi yeminyaka engu-2-1 / 2 nesibhedlela, ngaxoshwa. Sengikhululekile manje ukuthi ngikhulume ngokusobala ngobubi bokususa isisu ngemuva kokubona ukwethuka kwaso ngamehlo ami. Ngiyakwazi ukufakazela iqiniso lokuthi Lowo + uNkulunkulu = intando yeningi. Ngamunye wethu unezwi okufanele alisebenzise ukumisa isihluku sokubulala isisu.
(*Le ndatshana ihlelelwe ukufushane. Indaba egcwele ingatholakala lapha.)
ECanada, namanje akukho emthethweni ukuhlinzeka ngomuthi ohloselwe ukuthenga isisu. Lokhu akukhona ukubulala, kepha kuyicala umuntu angaboshwa ngalo kuze kube yiminyaka emibili (Ukuvuselelwa: UJill Stanek ungibhalele wanginikeza isixhumanisi sokwaziswa ngokukhishwa kwezisu bukhoma. kwenzeka eCanada. Ungafunda ngakho lapha.) Noma kunjalo, kusemthethweni ukubulala ingane engakazalwa noma kunini ngaphambi kokuba umama aqale ukubeletha — elinye lamazwe ambalwa emhlabeni avumela ukufa ngamabomu kwezingane ezizelwe isikhathi esigcwele. (Umthombo: I-National Campus Life Network)
